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Celine Dion in un'intervista a Vogue France è tornata a parlare della sindrome della persona rigida: "Ho questa malattia e devo conviverci". Le è stata diagnosticata nel 2022 e ha dovuto interrompere i suoi concerti. "All'inizio mi chiedevo, perché a me? Perché è successo? Che cosa ho fatto? È colpa mia?", dice. "La vita non ti dà risposte - continua - devi imparare a viverla. Per qualche motivo ho questa malattia, per come la vedo ho due scelte, mi alleno come un'atleta e lavoro duramente oppure smetto ed è finita".
"Niente mi fermerà"
Ha raccontato anche del team medico che le salva la vita: "Il mio obiettivo - sostiene - è di riuscire a vedere di nuovo la torre Eiffel. Ho questa forza dentro di me. Niente mi fermerà". In merito ad un suo eventuale ritorno sulle scene, la cantante sottolinea che non lo sa, sarà il suo fisico a dirglielo.
Cosa è la sindrome della persona rigida
Si tratta di una malattia rara. La patologia neurologica da cui è affetta Celine Dion è progressiva e incurabile, con il corpo che attacca le proprie cellule nervose con un grave impatto sulla mobilità. La cantante di Titanic nonostante lo stato in cui versa, continua a sperare in una guarigione.
I sintomi più comuni
Si manifesta con contrazioni muscolari dolorose e spasmi, che più frequentemente iniziano nelle gambe e nella parte bassa della schiena ma possono colpire anche l’addome e, meno spesso, la parte superiore del tronco, le braccia, il collo e il viso. Mancanza di respiro se la malattia colpisce i muscoli del torace; Dolore cronico; Postura rigida o rigidità a causa di spasmi continui alla schiena o al tronco; Difficoltà a camminare, instabilità e cadute a causa di spasmi improvvisi; Aumento della curvatura della parte bassa della schiena (iperlordosi) che si sviluppa nel tempo a causa della tensione muscolare; Cambiamenti nell’allineamento della colonna vertebrale, che possono portare alla compressione del midollo spinale (mielopatia); Ansia e paura dovute alle cadute causate dagli spasmi. (Leggi qui)
26/04/2024
